February 25, 2008

hot hot hot

ben_14months_kimono.jpg
Ben, Berkeley, CA, 14 months, Canon Digital Rebel Xti

Dear Ben,

It was a doozie of a day I tell ya. You were flushed with fever all weekend, all hot and subdued. We called you the sub-dude for kicks. It was a little scary, particularly when I was holding you on my hip, spooning some yogurt into your mouth and suddenly you fell back in my arms and went all crazy eyes and non-responsive for several seconds. A febrile seizure is what the doctor said it was. So scary for me and dada.

And then today you were even hotter.. and acting very strange and spacey and like a limp little doll in my arms. You had another convulsion, one that lasted several very long seconds and then you were back and spaced out again. By this time I was crying and hyperventilating and called 911. I was so scared... but you were okay, very hot but okay. We spent the rest of the day trying to cool you off.

Sigh.

You are in bed right now. It is nighttime and I am hoping that your fever breaks soon. It occurs to me as I write this that I am one of many moms praying right now, a powerful chorus of us, all praying for healing to come. It must be quite a thing to behold, to hear such a sound, in the place where prayers are heard.

The great news is that you are walking like such a champ! and have been perfecting your technique over the last month. You started with the drunken sailor method (very charming I may add) and have slowly gotten more steady and less waddly. You still have a very wide-legged stance, which I think is very smart since it gives you a nice solid foundation. You are an official toddler now. You toddle wherever you go.

We also made our first breakthrough in the chewing department recently. I brought home a roasted chicken from the grocery store and you stared at it with huge, disbelieving eyes. If eyes could salivate, yours surely would have been. The babysitter and I commented on how sad it was; you so clearly wanted to eat that chicken but there was no way you'd be able to chew such a thing. Then it hit me. I took a bite and chewed it up myself, then put it in your mouth. You ate it effortlessly. You were so excited that we did this many more times until you had eaten a good portion of the chicken and your belly was ginormous. You were practically biting my fingers to get to it. My little bird!

Since then, you have been chewing crackers, those puffy cereal things and the occasional cut up piece of fruit. This is serious progress. It will be so nice to not have to feed you from a jar all the time.

You are also collecting a number of words you like to say:
Uh oh.
Wow... (say it like Jeff Spicoli) This comes out when we put on the itunes visualizer.
Ball.
Mmmmm!
Bye.
Hi!
Wow wow (for dog)
mama (for food)
dada
No.
No no no. (with head shaking back and forth)
NO!
no no no

You also have a couple of signs under your belt. You are starting to get the sign for "more" and then you've made up a few of your own. When you want to hear your Music Together cd, you point at the stereo and flap your arms up and down. Not officially an ASL sign but totally works. I understand you little dude.

And after waving my hand at the stove and saying, "Hot hot hot!" several times, you started signing hot for everything I tell you not to touch. The toilet? Hot. The diaper pail? Hot. The garbage? Hot hot hot. It's going to be a little confusing when you discover that the toilet and the computer keyboard aren't actually hot, but whatever, you are so excited to tell me about all the things you're not allowed to touch! It is so sweet Ben.

I find myself getting teary as I write this.

I think today took more out of me than I thought... now that you are sound asleep I can let go a bit, let the floodgates open and feel the tears come through.

My beautiful boy. You were so hot hot hot today. I will look it up, but I'm not sure there is a sign that can express how much I love you. It might end up looking more like an interpretive dance.

Posted on February 25, 2008 07:39 PM
Comments

oh andrea - that is so scary. my son has had several febrile seizures. they are so awful and make the poor mama feel so helpless. i am hoping little ben is feeling better very soon. take care of yourself.

Posted by: Jen b at March 1, 2008 07:46 PM

oh Andrea, i have tears in my eyes. would that all children were as cherished as Ben. I hope he's on the mend and toddling again
love your blog
marilee

Posted by: marilee pittman at February 28, 2008 04:48 PM

oh Andrea, i have tears in my eyes. would that all children were as cherished as Ben. I hope he's on the mend and toddling again
love your blog
marilee

Posted by: marilee pittman at February 28, 2008 04:47 PM

Again you make me happy cry andrea. xoxo!

Posted by: liz at February 28, 2008 11:53 AM

Your family is in my pryers.
Keep invisioning your baby boy well and with tons of energy and smiles. I will as well.


Always a pleasure to read your blog,

Take care superhero you.

Samantha

Posted by: s at February 28, 2008 07:15 AM

Your family is in my pryers.
Keep invisioning your baby boy well and with tons of energy and smiles. I will as well.


Always a pleasure to read your blog,

Take care superhero you.

Samantha

Posted by: s at February 28, 2008 07:15 AM

Your family is in my pryers.
Keep invisioning your baby boy well and with tons of energy and smiles. I will as well.


Always a pleasure to read your blog,

Take care superhero you.

Samantha

Posted by: s at February 28, 2008 07:14 AM

Your family is in my pryers.
Keep invisioning your baby boy well and with tons of energy and smiles. I will as well.


Always a pleasure to read your blog,

Take care superhero you.

Samantha

Posted by: s at February 28, 2008 07:14 AM

'It occurs to me as I write this that I am one of many moms praying right now, a powerful chorus of us, all praying for healing to come. It must be quite a thing to behold, to hear such a sound, in the place where prayers are heard.'

Those are such beautiful, heartfelt words. I hope your prayers are answered by a cool wind and chilled Ben.

Posted by: Samilja at February 27, 2008 07:31 PM

how are you guys doing today?
xo

Posted by: jen downer at February 27, 2008 04:58 PM

Dear Andrea,

Last night our 2-year-old son threw up 6 times, and it truly is SO hard as a mama to see our little ones suffer. He sat on our couch with his pale little face and said, "I'm sick, Mama. Mama, I'm sick." I was so thankful for mama friends to call who I could trust for support and advice, and I'm blessed to be a part of your blog community to share in our mama ups and downs. I will add my voice to the chorus of prayers for our sons and daughters and will be sure to mention Ben by name.

Posted by: Carole at February 27, 2008 04:27 PM

Darling picture! He gets more handsome all the time. So sorry to hear he is not feeling well. I hope his fever breaks soon! We have been hearing all of the exciting news. It sounds like things are going great and you all are busy. Lots of love to you all!

Posted by: Sunny at February 27, 2008 04:05 PM

If this makes any sense Andrea...I have missed reading this sort of writing from you. You have such a gift. You are such a good mama.

Posted by: Ali at February 27, 2008 04:01 PM

Poor you and poor Ben. Scary mom moments like that are not cool! My nephew has seizures when he has a fever. I guess some kids are like that...... I hope he's back to regular temps soon.

Posted by: kim in Camas - ScrapToMyLu at February 27, 2008 03:00 PM

loving you, ben and your oh-so-amazing heartfelt words...the best of healing love to ben, me

Posted by: jessica at February 27, 2008 02:42 PM

dear Ben,

you are so blessed to have such a beautiful mommy who loves you so and takes such good care of you. i am a mommy too, and my little emma is just a wee bit older than you, but all 'mommy prayers' are the strongest and loudest of them all...even when they are but a whisper of prayer...and even in the darkest of the darkest of all nights...(which is, i presume) when most of the neediest of 'mommy prayers' go up :) i hope you are feeling better soon little guy :)

much love,
'emma's mommy :)

Posted by: shelbi at February 27, 2008 12:37 PM

Awww... you seem like such a GREAT mom!!!! :-)

Posted by: The Hope Experiment at February 27, 2008 12:35 PM

Poor Ben... feel better soon!

Having a sick child is probably the most helpless feeling in the world. There is never enough you can do and, unfortunately, you can't take on that burden for them - no matter how much you wish to.

Just remember that he knows you're there for him, and he will feel better. Take care, Andrea.

Posted by: Jen at February 27, 2008 12:11 PM

oh, my...sending you warm aloha and thoughts of wellness to you and little Ben.

Posted by: kathi at February 27, 2008 12:06 PM

I am saying prayers for little Ben.

I gave my mom the same kind of scare when I was a wee one. When she tells the story of my convulsions, I can hear the panic that she must have felt and I am glad that she had good neighbors to lean on. (My dad was out of the country at the time! And she had my two older brothers to care for.)

Man, just after writing that, I want to give every mother a big hug and say a million prayers for them all. xoxo

Posted by: christine at February 27, 2008 12:01 PM

I just want to add my prayer to all the others here that your beautiful son is well on his way to feeling healthy again. The three of you have been on such a journey together. Hope you are all getting lots of rest tonight!

Posted by: Alexandra at February 26, 2008 11:44 PM

Wow.
timely.
I m putting my twelve year old daughter to bed with a prayer and a temperature rising.
It doesn't get easier, they just are able to tell you WHERE it hurts.

Tomorrow will be brighter. yep!
He is beautiful all toddley!

Posted by: Kristarella at February 26, 2008 10:17 PM

you are ok.

:)

Posted by: janet at February 26, 2008 10:11 PM

Oh. God. Crying now. Not out of sadness, you just wrote so well I felt the fear. How beautiful an image to think of all the mother's prayers as a chorus.

Blessings to you, Matt, and Beautiful Ben.

Posted by: Shelley Noble at February 26, 2008 08:11 PM

praying for you, praying with you and all those other mamas, praying that my little ones are feeling better soon though they were not in the scary hot place ben was. such a good mama, such a wonderful way you have of letting us know what is going on with you. i love the image of ben gobbling roasted chicken, no stopping him now.

Posted by: mamie at February 26, 2008 08:09 PM

Sending thoughts of health and strength your way. So scary...

Posted by: cjh at February 26, 2008 07:29 PM

OH baby ben and poor mama~ I hope today brings you cool breezes all day to tame the "heat" that has been invading your body.....From one mom to another I feel your fear, pain and worry....today I hope they are all washed away and know that I am one of those moms sending out prayers to you and yours to that place "where prayers are heard"
xxo to you and your family

Kathleen

Posted by: Kathleen at February 26, 2008 04:38 PM

oh sweet, beautiful ben...speedy recovery. you are mighty loved.

Posted by: wendy at February 26, 2008 04:22 PM

Oh my dear sweet Andrea, Mama to Ben, I am praying for Ben(and you and Matt)! I know I would have gone into panic mode, called 911 and felt my heart drop. These little precious beings are so tough and delicate at the same time. It can be so scary to be first time parents sometimes. I am sending him healing prayers and Angels of healing. -L

Posted by: Leia at February 26, 2008 02:58 PM

Andrea,
I hope Ben gets better soon. Your talent is so great that even when you are going through a hard time you still transform your emotions into pure beauty, inspiring and touching for your readers. Thank you for sharing yourself and your tears. ..I think I need a tissue.

Posted by: ollka at February 26, 2008 02:46 PM

On Saturday, my six-month-old niece also passed out for a few heart-crushing seconds, so I know the panic you must have felt.

Thinking of you and Ben (and Matt too) and wishing you all well.

Posted by: Leah at February 26, 2008 02:32 PM

no words, only feelings. can you feel them, andrea?
xoxox

Posted by: jen d at February 26, 2008 02:13 PM

This post made me teary.
Just home from the doctor and having fertility issues. I came home to read this and I could feel the love and connection you have with Ben. I am such a huge fan of yours. You inspire me to be myself and to keep on creating my art and to live fully and brightly. I know you went through fertility issues although I haven't read your past posts to know what you went through. I am newly married ( 4 months ) and newly on the path of starting a family. I may hunt through your past posts to learn more. I would love to connect with you. I may just sign up for your Squam workshop!
Love and more love and hope Ben feels better soon.
xoxoxox

Posted by: Catherine at February 26, 2008 02:13 PM

Thank you so much for sharing this ! My heart is open super wide after reading your letter to Ben--tears falling with admiration and joy at the beauty of the imagery of "the place where prayers are heard"

Posted by: Connie at February 26, 2008 01:21 PM

Thank you so much for sharing this ! My heart is open super wide after reading your letter to Ben--tears falling with admiration and joy at the beauty of the imagery of "the place where prayers are heard"

Posted by: Connie at February 26, 2008 01:20 PM

Thank you so much for sharing this ! My heart is open super wide after reading your letter to Ben--tears falling with admiration and joy at the beauty of the imagery of "the place where prayers are heard"

Posted by: Connie at February 26, 2008 01:20 PM

I was especially moved by your line, "I am one of many moms praying right now, a powerful chorus of us, all praying for healing to come. It must be quite a thing to behold, to hear such a sound, in the place where prayers are heard."
You write so eloquently and really capture the heart of motherhood.
I just wanted to encourage you that my middle son, now fourteen had a febrile seizure when he was one and he never had another one. Once was enough.

Posted by: jen at February 26, 2008 12:42 PM

Hi Andrea, I've been reading your blog for years but never posted. I'm not a parent, not even married, but I can appreciate this post. It's beautiful and makes me think of my mom. Thanks for this extremely personal sharing. Looking forward to seeing Ben bounce back!

Posted by: wendy at February 26, 2008 11:42 AM

Wow--so sorry for Ben and you. I'm impressed that you have the strength to post about it! Talk about stressful! I hope you're both feeling better today. Thanks for sharing this beautiful post. I love the part about Ben waving his arms to signal his favorite cd. I remember that too in my daughter and it's just the sweetest thing.

Posted by: simone at February 26, 2008 11:35 AM

yes, mama. you write so truthfully.
praying for Ben (and you)..

Posted by: tiffany at February 26, 2008 10:11 AM

My parents still remember to this day (and I'm 40, mind you) the time when I had a 105 degree temperature and the doctors had to put me 'on ice'....And now that I'm watching my brothers go through things for the first time with their young children, I'm reminded all over again how scary and worrisome it all is. You know, watching babies throw up like crazy while they're away from home or having to drive them around in the car to get them to calm down enough to take their afternoon naps.....One of my brothers is dealing with a catastrophic food allergy thing with one of his girls. It's hard trying to figure things out, especially with a little guy that can't tell you what's up. Even though I'm not a parent myself, I definitely feel for you all

Posted by: Jennifer at February 26, 2008 09:19 AM

When i hear of mommies praying...being scared...I always think of this song...here it is for you...http://www.youtube.com/watch?v=rvOM38nvbI0 . May you always feel them around you xx

Posted by: Linni at February 26, 2008 09:05 AM

When i hear of mommies praying...being scared...I always think of this song...here it is for you...http://www.youtube.com/watch?v=rvOM38nvbI0 . May you always feel them around you xx

Posted by: Linni at February 26, 2008 09:04 AM

So sorry to hear about Ben and what you and Matt went through; hope he's feeling better this morning! I remember when Kadison had her first real fever and how she just laid in my arms for hours not moving...very scary and sad. Moms and praying ...that's something I don't think every weans...

much love to you all ~ hope to see you soon!

xo

Posted by: stef at February 26, 2008 08:47 AM

a beautiful post. Hope your little guy is feeling better. Mine is also very sick with fever and hasn't slept well (during naptime) for almost 2 weeks, too. May he get well soon.

Posted by: Sarah M at February 26, 2008 08:25 AM

I'm so sorry things feel scary right now. My heart goes out to you guys :-( I have never been through a febrile seizure with Jacob, but when he has a fever and is lethargic it always, always scares me. I go on hyper alert.

Your post is just beautiful and I am amazed by your ability to write it in the middle of such scariness, although it makes perfect sense to write these words at this moment.

Sending thoughts of lots and lots of angels your way (and Ben's way, of course).

Jennifer

Posted by: Jennifer (she said) at February 26, 2008 07:34 AM

That would scare me sooo much! I hope he's fever broke and you all are able to relax a bit. Ben is so cute!!! I don't think I can say that enough.

Posted by: Maya at February 26, 2008 06:58 AM

Hi Andrea,
I have been reading your blog for several months now but have never commented until now. My daughter also experienced febrile seizures as a toddler and they were the most frightening experience, especially the first one. Even though we were told that they would not hurt her, I would go completely weak in the knees every time it happened, 6 times from the age of 14 mos to 2 years. She is 20 and in college now but reading about your experience brought it all back like it was yesterday. Take care and know that your beautiful little boy will be just fine!

Posted by: Cheryl at February 26, 2008 06:51 AM

Hi Andrea,
I have been reading your blog for several months now but have never commented until now. My daughter also experienced febrile seizures as a toddler and they were the most frightening experience, especially the first one. Even though we were told that they would not hurt her, I would go completely weak in the knees every time it happened, 6 times from the age of 14 mos to 2 years. She is 20 and in college now but reading about your experience brought it all back like it was yesterday. Take care and know that your beautiful little boy will be just fine!

Posted by: Cheryl at February 26, 2008 06:50 AM

Hi Andrea,
I have been reading your blog for several months now but have never commented until now. My daughter also experienced febrile seizures as a toddler and they were the most frightening experience, especially the first one. Even though we were told that they would not hurt her, I would go completely weak in the knees every time it happened, 6 times from the age of 14 mos to 2 years. She is 20 and in college now but reading about your experience brought it all back like it was yesterday. Take care and know that your beautiful little boy will be just fine!

Posted by: Cheryl at February 26, 2008 06:50 AM

I am *melting* with the sweetness of his hotness and this beautiful glimpse-- but OH, how terrifying to have your baby (okay, toddler) be so sick. Terrifying.

Posted by: Elizabeth at February 26, 2008 06:20 AM

Oh, this happened to my daughter when she was about Ben's age. It scared me so much, (the seizure). I'd never heard of them and my husband and I thought she was dying.

I've tried to write about that experience but it truly still (9 years later) makes me cry. Not because a febrile seizure is so bad, it's not at all, but because it was the first and only time in my life as a parent that I faced what seemed at the time to be certain reality my child was going to be taken from me.

I hope he's better soon! I know he will be.

Posted by: MelissaS at February 26, 2008 06:18 AM

I'm sorry you experienced that…how very scary. I've oftened think about that plane too…that prayer plane where all the worries of parents go, how it must hum along into infinity. I pray that Ben gets well soon and that the fever breaks and doesn't return.

Posted by: Susan at February 26, 2008 06:16 AM

We'll say a little prayer for a cooler baby...

Posted by: blackbird at February 26, 2008 05:19 AM

fevers scare the beejezus out of me, like nothing else.

i am one walking raw vulnerability now that i'm a mama and even though my girl is almost seven now, i still feel this.

prayers that little ben's fever breaks today and that your bebe is back to himself really soon.

i loved the image of you feeding your boy chicken - i so remember those days.

Posted by: kristen at February 26, 2008 04:26 AM

I have sent up those nighttime prayers myself. It must be so scary for you to have him so hot and to have those seizures. I hope he is cooling down and getting back to the work of walking and talking.

Posted by: Bunny at February 26, 2008 04:00 AM

God Bless, you. We experienced similar situations with my son after his first two sets of shots. Nothing in the world can compare to the pure cold fear that runs through a momma's veins when she sees her babe in that sort of state. It is like an out of body experience for me that seemed to last hours, only it really was a minute or two. Another person took over my body and we went into "survival mode." It was not until after we were home from the ER, our babe tucked into bed, that I was able to exhale and reflect on what just ocurred.

Posted by: Lisa at February 26, 2008 03:39 AM

Oh Andrea, you poor thing - there is no deeper exhaustion than what you feel now, is there? Been there, and it is so draining - that tight grip around your heart.

I laughed too though at your post - we have used sign language with Declan (he will be 2 in a couple of weeks - can you believe it!) and it was so good - especially for him to be able to communicate with us and try to reduce his frustration. And he was so cute about "hot, hot, hot" too - anything that looked even remotely like our heater would illicit a quick intake of breath and a "hot, hot, hot".

Thinking of you all - hope you all got some rest and are feeling better.

Posted by: Michelle at February 26, 2008 01:46 AM

OH SWEET BEAUTIFUL BEN!!
(((( HEALING HUGS))) and soft desert breezes to cool you down
gentle hugs to you amazing andrea-
while i usually have words of calm wisdom as a grandma now- i would have flipped out over the fever seizure. ]May tomorrow bring a healthy Ben
xo

Posted by: MARYBETH at February 26, 2008 12:19 AM

oh!

i feel so happy reading this. because life is amazing. and gives us fear and deep joy and love. and i am so happy for you.

Posted by: chloe at February 25, 2008 11:43 PM

oh!

i feel so happy reading this. because life is amazing. and gives us fear and deep joy and love. and i am so happy for you.

Posted by: chloe at February 25, 2008 11:43 PM

Oh Andrea, I have been at that place, praying for the limp, feverish little baby whimpering in my arms. I cannot imagine the fear of a febrile seizure. I'll say a little prayer for you tonight, because sometimes being the mama just takes everything out of you.

Posted by: lisa at February 25, 2008 10:15 PM

Dearest Andrea, I think that you need some rest as well.
Glad Ben is now sleeping and ok.
It must have been so scary for you.
As scary as fevers are, I learned with my daughter that really in some ways they a good sign that the body is working properly and gearing up to fight off those viruses and germs.
My prayer is that your sweet boy gets all better soon.

Posted by: Julia at February 25, 2008 09:33 PM

It is so sucky and scary when The Precious are sick - my own son had a surgery when he was only nine weeks old, so I can imagine how frightened and worried you've been.

Sending "feel better!" wishes to darling little Ben, and to his wonderful mama and dada, too!

Posted by: Michelle at February 25, 2008 09:33 PM

How scary for a mom!

Hope little Ben is feeling better soon.

And I know what you mean about that chorus of prayers...I can't tell you how many nights I would lie awake with a little sick child in my bed, just staring at him or her to make sure the next breath came, which each breath sending out a prayer of thanks and a simultaneous prayer for the next one to follow on its footsteps.

Posted by: Andrea at February 25, 2008 09:26 PM

So precious. I'm with you on the prayers...now as we're establishing more of a routine with our own boy, and I rock him to sleep, I find myself praying over him, for so many things - and I know I'm not alone. We're all praying for those crazy angels to keep us safe in the dark...

So glad your little hot hot hot dude is okay. The seizures must have been terribly scary. And hooray for chicken! Those rotisserie chickens are yummy, no two ways about it...

Posted by: Sam at February 25, 2008 09:18 PM

oh dear, it sounds like ben is out of the woods but i can't even imagine. and i would love to see that interpretive dance. :)

Posted by: jen maiser at February 25, 2008 08:48 PM

So lovely...
I just wanted to share with you about febrile seizures. My daughter had one or two a year from 12 months to about five years old. I was so scared, everytime-even when I knew they were not dangerous. I understand how you felt, they were the scariest moments of my young motherhood. Once she turned five, they were over. She will be 18 this summer, but everytime she gets a fever I remember that first seizure. All will be well. Blessings on your beautiful boy.

Posted by: Puanani at February 25, 2008 08:47 PM

I hope little ben is doing ok. And I hope you are doing well yourself. This post made my eyes tear up.

Posted by: Jennifer at February 25, 2008 08:43 PM

oh andrea, this is so dear! what a beautiful piece. i hope little ben cools down as he sleeps... sending him some soothing. what an inspiring mama you are (and i dont even have kids!

Posted by: Holly at February 25, 2008 08:34 PM